Below are some resources that many families suffering from pediatric Congenital Heart Disease have found helpful.
American Heart Association
http://www.heart.org/HEARTORG/
Children’s National Medical Center Heart Institute
http://childrensnational.org/departments/childrens-national-heart-institute/cardiology
Insure Kids Now: Learn how to get free or low-cost health and dental coverage
https://www.insurekidsnow.gov/
Mended Little Hearts of Washington DC
http://mlhofdc.mendedlittlehearts.net/
“It’s My Heart” by The Children’s Heart Foundation. A resource guide for patients and families affected by congenital and acquired heart disease.
http://www.amazon.com/Its-My-Heart-Childrens-Foundation/dp/0971154228